The Knowledge Board:
Stroke
Welcome to our new Research Blog on life after a stroke
The Patients Voice is running a research blog into the lifestyles of patients and their caregivers after a stroke. It would be really great if you could share your story with us and comment on the experiences of others if you can.
According to Wikipedia a stroke is the rapidly developing loss of brain functions due to a disturbance in the blood supply to the brain. This can be due to ischemia (lack of blood supply) caused by thrombosis or embolism or due to a haemorrhage. As a result, the affected area of the brain is unable to function, leading to inability to move one or more limbs on one side of the body, inability to understand or formulate speech or inability to see one side of the visual field. In the past, stroke was referred to as cerebro-vascular accident or CVA, but the term "stroke" is now preferred.
In particular we are interested in the following questions:-
• When did you have your stroke and what age were you then?
• Is there a history of strokes in your family? Do you suffer from any other conditions?
• What treatments do you use? In particular what is your experience of occupational therapy?
• What other lifestyle impacts have there been? How is your care-giving provided?
• What do you think of the information available to people who have had strokes? How could this be improved? Can you suggest any useful resources to other stroke sufferers?
• If you had any advice for a person who had just had a stroke what you it be?
These questions are only a guide and so please feel free to bring up any other issues that you consider are relevant to you. Thanks very much in advance for your help. Remember, a blog is really like having a conversation with lots of people at the same time and so please check back on the blog to see what others have said so that if you would like to add to their thoughts you can.
To take part, all you need to do is scroll down to the comments area, type in a nickname of your choice and then put your comments into the box. We look forward to reading your comments and, of course, thank you very much for your input. Finally can I ask you to bear in mind when you blog that your comments will not just be read by other respondents and The Patients Voice staff.
If you have any question please feel free to get in touch.
Best wishes
Belinda
The Patients Voice The Patients Voice is one of the many patient-focused services from Healthcare Landscape. Healthcare Landscape is a medical and healthcare research company, which conducts interviews with all the different kinds of people involved in the healthcare process. They range from patients and their carers, to medical professionals like nurses, pharmacists, physicians and academics. Our mission is to find out what they think and what their experiences have been.
We can interview over the web, at home or at a special research facility; depending on what type of study it is, the choice is often yours. We also run patient diaries and blogs, so you can air your views as honestly and informally as you like. We want to ensure that you have access to the best research experience, and in turn, our clients will learn from your story. Our clients are quite diverse. They range from pharmaceutical or medical device companies, to charities and government bodies. The Patients Voice is open to anyone in the world who wants to give an opinion and would like to try to make a difference. This forum gives you power by allowing you to get YOUR VOICE HEARD.
You should always consult your physician regarding any medical issues. While we attempt to make sure the information on this site is as accurate as possible consulting a medical professional is always to be advised.
Membership of the Patients Voice is Free and open to anyone.
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