The Knowledge Board:

Hepatitis C

 

This discussion has moved to our new site http://www.patient-experience.com/

 

Hepatitis C – Living with the Chronic Condition


The Patients Voice welcomes you to our latest ResBlog (using blogs to conduct research)which looks at the life experiences of people suffering from hepatitis C (Hep C)  infectious disease which  affects the liver. 

Around 300 million people across the globe are infected with hepatitis C virus (HCV).   Most people have few, if any symptoms after the initial six months after infection. But HCV persists in the liver in about 85% of those infected. Hepatitis C can be treated with medication, normally peginterferon and ribavirin. Only about 50% of patients are fully cured.

Some Hepatitis C patients require a liver transplant due to the development of cirrhosis or liver cancer.

The Patients Voice is particularly interested to hear your views and experiences about the following questions regarding infection with Hep C:-

  • What were the first symptoms you exhibited which made you think that you had Hepatitis C?
  • What was the diagnostic process like? How easy was it to receive the diagnosis?
  • What were the reactions of friend’s family and colleagues to your Diagnosis with Hepatitis C?
  • What sort of treatments have you received?  How effective have they been?
  • Have you had or do you expect to have a liver transplant?  What are your concerns about this operation?


Obviously these are just suggestions so please bring up anything you think other readers of the blog will find of interest.  Please do include links to any site you have found helpful.

Remember, a blog is really like having a conversation with lots of people at the same time and so please check back on the blog to see what others have said so that if you would like to add to their thoughts you can.
 
To take part, all you need to do is scroll down to the comments area, type in a nickname of your choice and then put your comments into the box. We look forward to reading your comments and, of course, thank you very much for your input!  Please do add any links which you think will be of interest to other readers and contributors to the blog.

If you have not already done so we would like to take this opportunity to invite you to join The Patients Voice.  The best way to do so is to click on the button below

To learn more about The Patients’ Voice click on our Privacy Policy or our Frequently Asked Questions (FAQ) section.

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We will be running a series of surveys with Hep C patients later in the year so it would be great if you could sign up for these projects. 

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About the Patients Voice.

The Patients Voice The Patients Voice is one of the many patient-focused services from Healthcare Landscape. Healthcare Landscape is a medical and healthcare research company, which conducts interviews with all the different kinds of people involved in the healthcare process. They range from patients and their carers, to medical professionals like nurses, pharmacists, physicians and academics. Our mission is to find out what they think and what their experiences have been.

We can interview over the web, at home or at a special research facility; depending on what type of study it is, the choice is often yours. We also run patient diaries and blogs, so you can air your views as honestly and informally as you like. We want to ensure that you have access to the best research experience, and in turn, our clients will learn from your story. Our clients are quite diverse. They range from pharmaceutical or medical device companies, to charities and government bodies. The Patients Voice is open to anyone in the world who wants to give an opinion and would like to try to make a difference. This forum gives you power by allowing you to get YOUR VOICE HEARD.

You should always consult your physician regarding any medical issues. While we attempt to make sure the information on this site is as accurate as possible consulting a medical professional is always to be advised.

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