The Knowledge Board:
Chronic Fatigue Syndrome
Welcome to our new ResBlog on Chronic Fatigue Syndrome and Myalgic Encephalomyelitis
The Patients Voice is running a research blog into the impact of Chronic Fatigue Syndrome and Myalgic Encephalomyelitis on quality of life of patients and their families. It would be really great if you could share your story with us and comment on the experiences of others if you can.
In particular we are interested in the following questions:-
- How long have you had CFS/ME?
- How did you condition start, gradually, over many years or decades? Or after a particular incident or infection? How did the symptoms change or intensify?
- What diagnostic methods were used? Who did you see about it?
- What types of treatment have you had and how successful were they?
These questions are only a guide and so please feel free to bring up any other issues that you consider are relevant to you. Even if you do not have Chronic Fatigue Syndrome and Myalgic Encephalomyelitis yourself but are a caregiver of somebody with CFS/ME we would be very keen to hear your story.
Thanks very much in advance for your help. Remember, a blog is really like having a conversation with lots of people at the same time and so please check back on the blog to see what others have said so that if you would like to add to their thoughts you can.
To take part, all you need to do is scroll down to the comments area, type in a nickname of your choice and then put your comments into the box. We look forward to reading your comments and, of course, thank you very much for your input. Finally can I ask you to bear in mind when you blog that your comments will not just be read by other bloggers and The Patients' Voice team but also the clients for whom we work.
Please leave a comment below.
The Patients Voice The Patients Voice is one of the many patient-focused services from Healthcare Landscape. Healthcare Landscape is a medical and healthcare research company, which conducts interviews with all the different kinds of people involved in the healthcare process. They range from patients and their carers, to medical professionals like nurses, pharmacists, physicians and academics. Our mission is to find out what they think and what their experiences have been.
We can interview over the web, at home or at a special research facility; depending on what type of study it is, the choice is often yours. We also run patient diaries and blogs, so you can air your views as honestly and informally as you like. We want to ensure that you have access to the best research experience, and in turn, our clients will learn from your story. Our clients are quite diverse. They range from pharmaceutical or medical device companies, to charities and government bodies. The Patients Voice is open to anyone in the world who wants to give an opinion and would like to try to make a difference. This forum gives you power by allowing you to get YOUR VOICE HEARD.
You should always consult your physician regarding any medical issues. While we attempt to make sure the information on this site is as accurate as possible consulting a medical professional is always to be advised.
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